Thursday, February 14, 2008

We're All Sick

Oh, this really sux. Braeden and DH got bad coughs with phlegm on Friday, DH with a ripping sore throat. We think they picked up the "bug" at my retina doctor appointment last week, since they both got sick the same day.

DH was off work Monday, went to the doctor Tuesday, only to be told he's got an upper respiratory infection (the common cold). Neither of us has ever seen a "cold" like this one. We were starting to think maybe it was strep, nope. Brae's being a real trooper. His cough is better than it's been, but now he's got a charming discharge coming from his nose. Still, after he rests for awhile he's off playing again. A nice warm bath helped his chest congestion a lot yesterday.

Braeden was to go this morning for his vaccinations, but I called Tuesday and they said no shots for him for at least 2 weeks, until after he's over this cold. Talk about the medical community run-around. Our pediatrician wasn't there that day, so the on-call pediatrician returned my call and said "no shots". When I called to cancel today's appointment and reschedule, they wouldn't let me, the nurses saying he'd be fine to have his shots with his cold, as long as he doesn't have a fever (which he doesn't). Still, that's not what the doctor said. After being on hold for nearly an hour, the doctor called back again to reaffirm his position - no shots. He said he'd be having an emergency nurses' meeting immediately and one of them would call back. A different story on that return call - Brae's appointment for today was cancelled and a new one made for about 3 weeks from now.

By Monday, I wasn't feeling too well myself, and now I've been stricken full force with the same "bug" DH and Braeden have. Not a fun thing, but I've never been one to give in to a cold, and usually keep going, doing the best I can. I was worn out by the time last night rolled around, and was glad when Braeden went to bed - ok, so I put him to bed about half an hour early. We'll all be fine in a few days. Meanwhile, we'll be gentle with ourselves.

What really sucks is that DH's whole family arrived in town last night for a week, and they wanted lots of Brae play time (sister has multiple kids) and a family photo done. Play time is definitely out for Brae for the next day or two - I don't want those other children catching this on their vacation or risk Brae getting sicker. As for the family photo this weekend, it'll depend on how we all feel. I certainly won't drag Brae to an outdoor photo session if he's still sick. While it's by no means cold here, it's too cold for him to be outside for hours while they take various poses so we can select our favorites. I'll keep you posted.

For now, I just want to rest as much as I can, relax, and not think about anything else.

Tuesday, February 05, 2008

Retina Leaking Again

Just a quick little background - I was diagnosed over 3 years ago with a cancerous tumor on my retina. They inserted a radiation plaque (like a disc) behind my eye in one surgery, left it there for 6 days, then removed it in a second surgery. That was supposed to kill off the tumor - and it did!!

I had my regular retina specialist check-up today. The good news is that the cancer is still gone, the tumor has vanished. The bad news is that because of radiation damage my retina is once again swollen and is leaking fluid (just like a year ago), and I've also got a radiation cataract which will have to be removed. My vision in that eye has deteriorated badly. I can now only read the 2nd line on the eye chart, and new glasses wouldn't help. They won't let me wear contact lenses either. I have to accept the fact that the vision in my treated eye is basically gone.

I had to have dye injected into my vein and over 100 photos taken of both eyes, of course many more of the radiation-damaged eye. Both eyes are still sore from all the poking and prodding, so many photos with the camera so close to my eyes, the bright flashes literally temporarily blinding me.

I'm waiting to hear back from the retina specialist once he views the pictures, on what the game plan will be this time. Last year they gave me a steroid injection into my eyeball, which hurt like sh** and didn't do anything to help. I refuse to do that again, although I'd definitely go for more laser surgery (I had two surgeries last year) to try and close off the leaks. I've gotta tell you though, I'm getting so dang sick and tired of dealing with this eye of mine, my lack of vision, the discomfort of feeling like there are 100 hairs in there that I can never get out (foreign body sensation), that it's tempting to just let them do an enucleation and get rid of the thing. It's almost useless now anyway.

I thank God every day that my other eye remains in perfect condition and with perfect vision. At least I can see Braeden with that eye. With my bad eye I can't even see his face anymore. It's just a blur. I've become paranoid about my good eye. If something happened to that one, I'd be legally blind and would never be able to see my son again. I have to think positively that my good eye will remain that way.

Thanks for letting me vent a bit here - this is definitely not fun stuff

Molars Arriving

Poor Braeden's finally getting his molars. The two top ones have broken through his gums, the two bottom ones are nearly there. He's drooling up a storm, chowing down on all the teething toys he's got. It doesn't stop him from bombing around or from sleeping, so we haven't given him any meds.

He's now operating his little TV and DVD player on his own, turning both on, ejecting an old DVD, throwing it across the room and inserting a new one in the tray, closing the door. Then he heads over to his Elmo chair and sits down to watch. All the DVDs we have are Baby Einstein ones, so I don't object to him watching about 10 minutes of one DVD in the morning after his breakfast. By then he's bored and ready to move on. When he's done I have to pull the plugs on both the TV and DVD player, or he'll play with them all day.

His latest antic is trying to climb up the back of the couch in the family room, looking over there, playing with the window blinds, then throwing whatever he's got in his hand over the back. I have a very hard time navigating "stuff" to get behind there and retrieve the wayward object, since we've got it blocked off so he can't get behind the couch, but so far I've managed to get his things back for him, him watching me over the top.

He goes Februar 14th for his next check-up and round of vaccinations. Obviously not looking forward to that, but it'll soon be over with for another few months. He hasn't been for shots in 4 months, although we had him once to the pediatrician when he had a weird cold (cough and wheezing) awhile back. It disappeared in a few days.

As for me, I've got an appointment this morning with my retina specialist, to check on the remnants of the cancerous tumor they found (and treated with radiation) 3 1/2 years ago. At m last check-up the tumor was totally gone - I'm praying that's still the case. These dang appointments still scare me, but I'm hoping and praying for a good report today. I'm usually there 3+ hours. It's long and gruelling, and I'm ready to sleep by the time I get home. I'll let you know how things turn out.